The PJ Tatler

Girl Who Nearly Didn't Get Lung Due to HHS Rule Marks Milestone

Remember the dying girl with cystic fibrosis who needed the courts to step in last summer to prevent the Department of Health and Human Services from enforcing a policy that prevents children under 12 from getting adult lung transplants? Lawmakers tried to step in and get Secretary Kathleen Sebelius to use her authority to override the rule and allow the transplant but Sebelius wouldn’t budge. Sebelius eventually lost, and the family won. And today they marked a milestone.