@IHadAMiscarriage Instagram Aims to Break the Taboo Around Miscarriage

“For a while you were real.” If any one sentence could sum up the grief of miscarriage, I think that one is it. It’s from the @ihadamiscarriage Instagram account, where Dr. Jessica Zucker is trying to lift the stigma, and break the taboo, around miscarriage.

According to Self magazine, Zucker is a psychologist who specializes in pregnancy loss and she posts both about her own experience (she suffered a particularly traumatic miscarriage at 16 weeks) and about the experiences of others who share their stories with her. The posts are paired with striking (sometimes NSFW) images and deal with all aspects of the experience of miscarriage. And so many of them (both Zucker’s own thoughts, and those of others) center around the grief of never getting to meet their children.

For me, the most shocking and devastating thing about having a miscarriage was how real my baby felt. My grief was not simply for the experience of becoming a mother that was now put on hold (perhaps indefinitely), but for the person that I’d never get to meet. My baby, regardless of the fact that he’d only been growing inside me for nine weeks, had been a baby. I was sure of it. And it shook me to my very core. Because, if this baby had been a baby (as I was now certain it was), what did it say about all the babies who never got to be born?

This, I think, is the single most important reason why there’s a taboo around miscarriage. This sense, that so many women have, that they lost a daughter or a son (not “an embryo” or “a fetus” or, worst of all “the tissue”) is, to put it mildly, problematic. Because, if we acknowledge the person-ness of wanted pregnancies, what does it say about the person-ness of unwanted ones?

View this post on Instagram

Invisible Girl by @pieraluisa. Posted with permission. _ There is an invisible girl in this photo. Look closely. Can you see her? No? Perhaps, then, I imagined her. You're right. I did. _ I imagined a lot. A life. A love. _ You upside down on the monkey bars Me clenching my teeth in fear while cheering you on. My fearless girl. My powerful girl. I wanted to keep you that way. _ For a while you were real. Confirmed by a heartbeat. A squirm. A black and white image. With me, a surfacing sense of possibility. A yearning so deep I wanted to hide it from myself. _ Apprehension too. For compromise, identity mutated, for what life might be and not be. I wanted you so bad, but you scared me. _ Did I scare you? _ Then one day, a rush of blood. Running panicked through an office. A hospital. A sharp inhale. _ Did you know that if you hold your breath you can stop time? I tried to create a force field so bad news couldn't land on us. I tried that and it didn't work. _ Desire calcified in the moment it was not. Grief cracked me wide open. Heart way too open now. If there is such a thing. My world filmed in a lace-like web of beauty and pain. Small moments unfolding, opening trap doors. _ As I reconfigure my dreams, don't tell me that I lived too much. Shhhhhhhhhhh. Just listen. Shhhhhhhhhhh. _ 'Cause I see it all right now. Life's mysteries laid bare. And I don’t want advice, I just want to be. _ Now sleeping with a palm-sized rock. Grieving an invisible girl. Molten to the touch when I wake, empty, filled up. _ Wherever you are, I'll save this space for you. And know I can always find you here. _ #IHadAMiscarriage #miscarriage #pregnancyloss #stillbirth #infantloss #motherhood #grief #loss #1in4 // Photo by @prue_stent.

A post shared by Jessica Zucker, Ph.D. (@ihadamiscarriage) on

Zucker refers to her own lost baby as Olive, and often imagines the life she might have had if she’d lived. “I imagined a lot. A life. A love. You upside down on the monkey bars. Me clenching my teeth in fear while cheering you on. My fearless girl. My powerful girl.” Olive. And her almost poetic posts often speak directly to her daughter. “How can the late afternoon summer breeze remind me of you when we never even had a chance to experience a moment together, let alone a season?” she writes. “You are loved like nobody’s business, Olive.”

View this post on Instagram

@thejonesmarket shares: "Life keeps moving. And there are "good" days. This really just means you were able to leave the house and make small talk if you have to. So, there you are standing in a safe, shallow spot of a relatively calm ocean, small talking and almost beginning to enjoy the sun when a wave comes from no where and drags you under water. You don't know how long until you'll be able to breathe again. You never know. All your mind can think is "I want my son, I want my son, I want my son, my son is dead, my son is dead, my son is dead". If you try to fight your way back up too fast you'll get knocked against the unforgiving sharp shells again, so you stay. The bottom of the ocean feels like an appropriate place to be anyway. Grief." _ #IHadAMiscarriage #miscarriage #infantloss #stillbirth #grief #loss #motherhood #1in4 // Illustration by @pedrotapa found via @picame.

A post shared by Jessica Zucker, Ph.D. (@ihadamiscarriage) on

Zucker and other commenters on the site don’t shy away from calling these lost babies “sons” and “daughters” and there is frequent mention of death. Zucker highlights a post from user @thejonesmarket who writes, “I want my son, I want my son, I want my son, my son is dead, my son is dead, my son is dead.” And another from @januaryfeliz who writes of her lost daughter, “I am still learning how to confront and cherish the great painful love I had for her.”

Zucker also speaks candidly about the cause of her miscarriage, explaining that tests done on the baby’s body revealed a chromosomal abnormality that, had she lived, would have had devastating effects. “I took a deep breath for the first time in days,” she writes, about finding out this information. “This news felt reassuring to me and my husband alike.”

It felt that way to me too, when I received similar results about the baby I’d lost. But my doctors were shocked that I’d want these tests performed at all. “This is just your first miscarriage!” the doctor told me. “There’s no need to run tests.” Perhaps not, if what I’d lost was simply “the tissue,” as my doctors referred to it. But I wanted to know how my baby had died.

Zucker is open about the fact that, had she not suffered a miscarriage, she would have terminated her pregnancy upon learning that her daughter had a chromosomal abnormality. And she welcomes women into the the @ihadamiscarriage circle who have opted to terminate their pregnancies for “medical reasons.” This is a thorny issue, and one which poses, perhaps, more of a gray area than the termination of pregnancies simply because they are unwanted. But Zucker certainly does not seem to welcome women who have chosen to do that.

Whether or not you agree with Zucker’s opinions on the termination of wanted pregnancies, it seems fairly clear to me that this Instagram account is doing what few other sites are doing. It’s allowing grieving mothers to speak of the children they’ve lost. It’s giving them permission to say that these children were children, and validating their grief. This, with all the messy inferences that must be drawn from it, is the only way to truly end the taboo around miscarriage.