From The Boston Globe:
“They were making the white-knuckled trip from Connecticut because 14-year-old Justina wasn’t eating and was having trouble walking. Just six weeks earlier, the girl had drawn applause at a holiday ice-skating show near her home in West Hartford, performing spins, spirals, and waltz jumps.
But now Justina’s speech was slurred, and she was having so much trouble swallowing that her mother was worried her daughter might choke to death.
Justina had been sick on and off for several years. A team of respected doctors at Tufts Medical Center in Boston had been treating her for mitochondrial disease, a group of rare genetic disorders that affect how cells produce energy, often causing problems with the gut, brain, muscles and heart.”
At the advice of her specialist Dr. Mark Korson, Justina was taken to Children’s Hospital, rather than Tufts Medical Center where she had standing appointments and ongoing care. Korson wanted her seen by the gastroenterologist that had treated Justina for some time, until he left Tufts to practice at Children’s.
Much to her parent’s dismay, Justina was never allowed to see the doctor, in spite of the fact he knew her case well. Instead, she was assigned a new team of doctors.
Within three days her diagnosis was completely disregarded and her parents were informed that the new team was withdrawing their daughter from her medications. In spite of the fact Justina was physically deteriorating, the Children’s Hospital doctors believed Justina’s problems were psychiatric in nature.
When Justina’s parents objected, they were met with a letter demanding acceptance of the new diagnosis and treatment. The letter also forbid the parents any outside consultation, transfer to a different hospital or even a second opinion.
When Justina’s father arrived he was more than a little upset:
“We have standing appointments for her at Tufts,” he said. “Enough is enough. We want her discharged.”
[Justina's father] assumed it was their right as Justina’s parents to remove their daughter and take her to the hospital of their choice. But behind the scenes, Children’s had contacted the state’s child protection agency to discuss filing “medical child abuse” charges, as doctors grew suspicious that the parents were harming Justina by interfering with her medical care and pushing for unnecessary treatments.
When it became obvious that Justina’s parents were not going to comply, but rather looked for ways to transfer her, the hospital placed a “minder” in her room around the clock to monitor the parents.
Filing charges allowed the hospital to get an emergency order to strip away all parental authority and protection. Justina’s parents were then escorted out of the hospital by security.
Justina has spent over a year in the hospital, locked away on a psychiatric ward, beyond the reach of her parents. Once Justina was locked behind the doors of a psychiatric unit, parental visits became more and more restricted.
As a ward of the state, there was basically no supervision of her care– and the hospital bill is allowed to spiral out of control. One can only imagine what it costs to live in a hospital for a year.
As troubling as this family’s plight is, what’s more worrisome is the fact that this is not an anomaly. Within 18 months this hospital was involved with at least five different cases the Globe could find,where a disagreement over a medical diagnosis resulted in parents losing custody of their sick children.
“It happens often enough that the pediatrician who until recently ran the child protection teams at both Children’s and Massachusetts General Hospital said she and others in her field have a name for this aggressive legal-medical maneuver. They call it a ‘parent-ectomy.’”
The Blaze reports that Massachusetts State Reps. Marc Lombard and Jim Lyons have begun circulating a resolution in hopes of persuading the Department of Children and Families to start the process of reuniting Justina with her parents.
“Parent-Ectomy” is a profound abuse of children, parents and moral authority.
Can you think of a more immoral abuse of power than a hospital that will use the legal system as a weapon to capture and steal sick children away from their parents until every last dime is squeezed out?
Photo taken from Justice for Justine